My big girl is doing very well. She hasn't had any episodes since the one yesterday. The medication they have her on seems to be working and she seems very happy and content. She is even doing better on her feedings. I think it was hard for her to go so long without eating and she was eager to get her tummy full so she drank 20ml from the bottle and they haven't put her feeding tube back in yet. She used the faster nipple and did better. The slow nipple seems to wear her out to fast. She was smiling at me and making cute faces while I fed her today.
The cardiologist called and talked to Jesse today. He says that Addison is responding well to the medication and they plan to monitor her closely to make sure she doesn't go into another bad arrhythmia. Her echocardiogram was pretty much normal. She does have a small hole in one of the chambers but that is normal for her gestation and it should close on its own. I asked when she could come back to the continuing care nursery and be by her sister and the PA gave me a "look" when I asked that like I was trying to speed things along. In reality I just wanted to know what the plan was. She said Addison will be in the ICU for a "while" longer and her move is based on the nurses’ schedule and her acuity. So basically they have no idea. I just hate the not knowing part of this journey but each day is a day closer to them coming home and I just keep saying my prayers that they will remain healthy and come home when they are ready.
Riley is doing very well and is completely stable. She is less interested in nippling her milk, but I know she will get it very soon. She just melts my heart when she makes faces while I hold her and looks my direction when I talk to her. I will be so happy when she gets into her open crib and that should happen very soon.
The cardiologist called and talked to Jesse today. He says that Addison is responding well to the medication and they plan to monitor her closely to make sure she doesn't go into another bad arrhythmia. Her echocardiogram was pretty much normal. She does have a small hole in one of the chambers but that is normal for her gestation and it should close on its own. I asked when she could come back to the continuing care nursery and be by her sister and the PA gave me a "look" when I asked that like I was trying to speed things along. In reality I just wanted to know what the plan was. She said Addison will be in the ICU for a "while" longer and her move is based on the nurses’ schedule and her acuity. So basically they have no idea. I just hate the not knowing part of this journey but each day is a day closer to them coming home and I just keep saying my prayers that they will remain healthy and come home when they are ready.
Riley is doing very well and is completely stable. She is less interested in nippling her milk, but I know she will get it very soon. She just melts my heart when she makes faces while I hold her and looks my direction when I talk to her. I will be so happy when she gets into her open crib and that should happen very soon.
They do have a way of just melting your heart, don't they? It sounds like things are going well with Addison - I hate when they give you those looks for asking questions you are entitled to ask! Hopefully, she'll move quickly back to continuing care and into an open crib and will be back with Riley in no time. - Tess
ReplyDeleteEnjoy your first mother's day Amy! Your girls are fighters like their momma!
ReplyDeleteWhat a great post to read today! Glad that Addison is doing well, and I hope she gets moved back by her sister quickly!
ReplyDeleteHappy Mother's Day, Amy. <3