Things were going very well with both girls up until today. Jesse and I went up to the NICU and he got a phone call right outside so I went in alone. I walked into Addison's room and she wasn't in there. I quickly found a nurse who told me that she had a very high heart rate and they moved her back to the ICU. I was freaking out. The nurse took me back to the ICU and there were about 5 doctors and several nurses all around Addison.
We learned that there is something wrong with her heart that allows the blood to run through it improperly and causes a high heart rate. They gave us the technical term and the cardiologist drew a diagram to show us what happened. Basically she will have to be on medication for at least the 1st year of her life and she can have more episodes like this now and again. She may even need to go home on a portable monitor to record her heart for periods of 24 hours.
I so scared to see her like that even though the doctors said she was fine. It was just so hard to see her being worked on and to know she was back in the ICU. They found Jesse outside and brought him in and we stayed with her for a little while. They told us she will need a few days back in the ICU. She won't get fed for 24 hours because they don't know if the blood was flowing properly to her bowels.
I went back to the visit both girls and Addison's rhythm was much better and her heart rate finally went down to the 140's where it has been most of the time. She was sleeping and the nurses wanted her to rest as much as possible because if she wakes up, she will probably be very hungry after not being fed for most of the day. We plan to hear more tomorrow after we see the cardiologist again.
It makes me sad that the girls are not close together, but it looks like Addison should come back to the continuing care nursery soon if all stays stable. Riley is doing well but she is in a period of not wanting to nipple much of her meals. She loves her paci but doesn't know what to do when milk is coming out of the nipple. Maybe she will do better after a little more time.
Happy 7th Birthday!!!
1 year ago