We got the call back from the Cardiologist finally and the results from the Holter monitor on Addison came back as normal. This is good news and it sounds like we haven't had another SVT episode since she was 2 weeks old in the NICU. I was wondering what was taking so long to get the results so I am glad to hear all is well with her heart at this point. We do have a follow appointment for the 24th of this month. She will probably get the dosage on her Propranolol increased since her weight is going up.
I also called the pediatrician finally regarding the dosage on Addison's Zantac for her acid reflux. Thanks to a good online friend (Tkeys), we learned that the dosage should continue to go up with her weight. Addison seemed to be having more issues with the Acid, so the extra dosage should help alleviate her symptoms again.
Yesterday was a strange day. Addison slept most of the day, only waking for feedings and we tried to keep her awake but our efforts didn't work. Riley on the other hand, was a pill to say the least. She was cranky most of the day. She wanted to be held and wanted to scream and at about 7pm she screamed and cried for 3 hours straight. She finally got to sleep 11. So here is where the flip flop takes place. Because Addison had slept all day, she needed to be awake and scream through out the night while Riley went to sleep and slept until 5am this morning. So what an achievement to have one baby sleep for 6 hours for the first time, but the other baby wanted to be awake and cry. Why can't we get both girls on the same page. Didn't they each get the memo that they needed to be awake during the day (with little crying) and sleep during the night??? Maybe once we increase Addison's Zantac dosage, she will have some better nights here soon. I'm excited that we might be eliminating one of the night time feedings if this pattern continues.
McAllister Family Reunion
5 years ago
I hope the increased dosage works! Maybe tonight the girls will BOTH cooperate. It really does make a big difference with Micah - he gets super cranky when his reflux is bothering him or he is in need of a food increase (either an increase in bottle size, or now, more solid food). Oh, and eliminating one of those nighttime feeds makes SUCH a big difference in your quality of life - hope that happens for you soon. - Tess
ReplyDeleteThey need to be reminded that they are supposed to be on the same schedule so mommy can sleep! LOL! I am glad all went well with her monitor and I hope the reflux will be better with the new dose.
ReplyDeleteOk so I tried to post a comment yesterday but it wouldn't let me so here it goes :-)
ReplyDeleteYAY for good test results! Hopefully the increase in Zantac will help her. I can only imagine being a baby with that kind of pain not knowing how to fix it and what it is.
YAY for Riley sleeping 6 hours! Hopefully it is the start of a beautiful nights sleep. Hopefully Addison will be on board soon. You (and Sara) will feel like a whole new woman when you eliminate a feeding. There is light at the end of the tunnel. Cohen sleeps from 7-4 and then until 6-7. We are working on elliminating the 4am feeding :-)
It is great that things are working out with Sara - it is always better when you can have family care for your children, and it has to give you a sense of relief.
ReplyDeleteI'm SOOO glad to hear that the increased Zantac is working! I found that even a .1 or .2 increase would make such a big difference. I started calling every time Micah gained a lb so they could authorize the increased dosage. We also keep mylanta on hand - for the week or so before he is ready for a dosage increase, we sometimes have to give him a dose of mylanta in the evenings to get him through. - Tkeys
On the sleep thing - Chloe (our first preemie) never slept through the night (she too had bad reflux, and she ate often). Then around 4 months, her doctor said we could try putting rice cereal in her bottle (Dr. Browns, Y cut, I think it was like 1 tsp per ounce or something?), and voile, she suddenly was sleeping at night. It wasn't technically considered a solid, since it was just thickening my breast milk feed (which many babies with reflux do anyway). I guess she just was too hungry without it. I'm not sure if it was 4 months adjusted or regular, though. But do know that might be a possibility in the future to help you get more sleep!
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